Archive for kidneys

Bukas (isang dramang hindi kasali si Hayden Kho)

Bukas, isang taon na akong hindi nada-dialysis. Bukas, birthday ko. Para akong isang sanggol na kailangan pa rin ng tamang alaga at bitamina. Kailangang matuto uling gumapang, tumayo, at maglakad. Kailangang maranasang madapa, bago bumangon.

Bukas, aalalahanin ko ang lahat ng hirap… hindi lang hirap na dinanas ko, kundi ng buong pamilya kong nagmamahal sa akin. Alam kong sa mga darating na araw, meron pa ring ibibigay ang Panginoon na hirap. Pero alam ko rin na gaya ng dati, kakayanin ko. Sa tulong ng panalangin. Sa tulong ng tibay ng dibdib. Sa tulong ng pagmamahal.

Bukas, may misa ng pasasalamat sa Sta. Clara de Montefalco sa ganap na ala-seis ng gabi. Sana ay sabayan niyo kami sa pagpuri namin sa Panginoon saan man kayo naroroon.

Pahabol-Sulat:
Bukas nga pala ay Mayo a vente siete. Hehe.

Pahabol-Sulat tayms tu:
Salamat ng maraming-marami sa lahat ng nagdasal at nagbigay ng tulong.
**kiss kiss hug hug**

stress

i started the week crying. which is not so bad coz i think i really needed it. i was praying before… i asked God… if the next check-up gives me a bad result, then i’ll go ahead with the transplant. when i got my blood test results, i texted my mom right away. i told her i will be getting ready.

i pity my mom. she’s been through a lot with me. what with problems with my marriage, my kids, and now my health. i couldn’t help but cry… and cry… and drain my tears on that day. this would have been easier if i have a husband by my side. this would have been a lot more bearable if someone loves me… cares for me… asks me how i am… or if i already ate… if i took my medicines…

well, now i’m back to taking steroids… i’m gonna bloat again… look like Shrek again… wah!!! My doctor felt like i need stronger medications coz i’m not getting the transplant done in the immediate future.

We’re currently getting our finances in order… i have undergone tissue typing… the results are not yet in, though. From there, we can start finding a donor/match. 4 cylinders of blood were taken… i almost fainted when i saw how big the needle was. it’s good that the medtech was good.

i also had my teeth treated. I should have one of them extracted, but my dentist doesn’t want to do it coz my blood pressure went up. well, that happens when you treat a person who’s actually scared of dentists, and was under the blinding light for four hours already. i have to come back again to finish everything… i have to do it coz i couldn’t after the operation. i need to have a medical clearance from my doctor first before the dentist will agree to extract the tooth.

2 days ago, my nephew, Vhon, was admitted to a hospital for what seems like a kidney infection. his face got all bloated, and he urinated something tea-colored. hay!!! it was a very stressful event.. my mom was crying again… and i had to be the strong one all over again… my previous worries about myself has to take a step backward.

well, the doctors said his creatinine levels are ok.. his ultrasound is normal… the problem now is, they can’t arrest the high blood pressure.

today, my mom and i went to the office of Congresswoman Susana of QC, to ask for financial help for my kidney transplant. The good congresswoman obliged and i was asked to come back tomorrow to pick up a guarantee letter to be given to PGH. I dunno yet how much it was for, though.

After that, i went to a salon to get my hair cut. I didn’t hear my fone ring. When i opened my fone, i saw 8 missed calls from my mom, and a very disturbing text. it said that her name was Kim, and i had to pick up my kid at Dominga street because of an emergency. I was a little hysterical while i called the number.

My daughter Anea’s left foot was run over by a school service driven by a lady driver. When i got there, it looks like a scene of a crime. It was a little scary. Though when i saw my daughter Anea laughing and that her foot wasn’t really that hurt, i gave a sigh of relief.

After xrays, she was asked to go home with only pain killers which she is not taking at all coz she’s insisting that it doesn’t hurt. She wants to come to school tomorrow still. Hay… capital P for Pasaway!

I have cancelled a date with Bes today. And she’s currently enjoying a milkshake! wah!!! anyway, tomorrow is another day… the week isn’t finished… i still have a lot to do… hepa profiles, vaccines, finish my dental appointment, find a donor!!! and most of all, pick 6 lucky numbers for the lottery! haha! what a week… really!

stress

i started the week crying. which is not so bad coz i think i really needed it. i was praying before… i asked God… if the next check-up gives me a bad result, then i’ll go ahead with the transplant. when i got my blood test results, i texted my mom right away. i told her i will be getting ready.

i pity my mom. she’s been through a lot with me. what with problems with my marriage, my kids, and now my health. i couldn’t help but cry… and cry… and drain my tears on that day. this would have been easier if i have a husband by my side. this would have been a lot more bearable if someone loves me… cares for me… asks me how i am… or if i already ate… if i took my medicines…

well, now i’m back to taking steroids… i’m gonna bloat again… look like Shrek again… wah!!! My doctor felt like i need stronger medications coz i’m not getting the transplant done in the immediate future.

We’re currently getting our finances in order… i have undergone tissue typing… the results are not yet in, though. From there, we can start finding a donor/match. 4 cylinders of blood were taken… i almost fainted when i saw how big the needle was. it’s good that the medtech was good.

i also had my teeth treated. I should have one of them extracted, but my dentist doesn’t want to do it coz my blood pressure went up. well, that happens when you treat a person who’s actually scared of dentists, and was under the blinding light for four hours already. i have to come back again to finish everything… i have to do it coz i couldn’t after the operation. i need to have a medical clearance from my doctor first before the dentist will agree to extract the tooth.

2 days ago, my nephew, Vhon, was admitted to a hospital for what seems like a kidney infection. his face got all bloated, and he urinated something tea-colored. hay!!! it was a very stressful event.. my mom was crying again… and i had to be the strong one all over again… my previous worries about myself has to take a step backward.

well, the doctors said his creatinine levels are ok.. his ultrasound is normal… the problem now is, they can’t arrest the high blood pressure.

today, my mom and i went to the office of Congresswoman Susana of QC, to ask for financial help for my kidney transplant. The good congresswoman obliged and i was asked to come back tomorrow to pick up a guarantee letter to be given to PGH. I dunno yet how much it was for, though.

After that, i went to a salon to get my hair cut. I didn’t hear my fone ring. When i opened my fone, i saw 8 missed calls from my mom, and a very disturbing text. it said that her name was Kim, and i had to pick up my kid at Dominga street because of an emergency. I was a little hysterical while i called the number.

My daughter Anea’s left foot was run over by a school service driven by a lady driver. When i got there, it looks like a scene of a crime. It was a little scary. Though when i saw my daughter Anea laughing and that her foot wasn’t really that hurt, i gave a sigh of relief.

After xrays, she was asked to go home with only pain killers which she is not taking at all coz she’s insisting that it doesn’t hurt. She wants to come to school tomorrow still. Hay… capital P for Pasaway!

I have cancelled a date with Bes today. And she’s currently enjoying a milkshake! wah!!! anyway, tomorrow is another day… the week isn’t finished… i still have a lot to do… hepa profiles, vaccines, finish my dental appointment, find a donor!!! and most of all, pick 6 lucky numbers for the lottery! haha! what a week… really!

To think or not to think

“At my age, sometimes I stop to think and forget to start again.”

This is my Dad’s signature at the end of all his emails. You might think that this will only be held true for people as old as him, but let me tell you one story–mine.

I was considered by some of my friends as someone as a thinker–too deep, too mature, and sometimes too serious, that a lot of them have come up to me for advice. I do not consider myself as an expert on life’s hardships. I do not think of myself as a saint. Nobody sees me during the times that I cry myself to sleep, because even if I can solve someone else’s problems, I cannot even get over mine.

Strong. This is the most commonly used term that people describe me as being. And I cannot contest this. Not because I am. It is because I can’t.

When people look up to you for advice, you cannot give the impression that you are only human… that you give up easily… that you cry helplessly. And because of these people… because of them, I cannot give up being strong.

When I see my parents sad and worried, when I hear my friends crying and swearing… I cannot show that I am sad and worried, too… I cannot tell them that I have cried and swore the night before.

How can I be of any help at all?

When I got sick, to say that the world crumbled around me is an understatement. Everyone knew of my dreams and my plans last year and the years to come. I was all set, so to speak.

I’ve thought of everything that I thought was important. I’ve thought of the job that I am going to apply for, I’ve thought of my kids, I’ve thought of a new house, I’ve thought of my marriage, and finally being whole as a person, changing my lifestyle and my attitude. I’ve thought that everything will be okay come June.

When I got sick in June, I thought that it was just something that would go away in weeks. I never thought that it would haunt my dreams for eternity. Besides, it’s not as if I had cancer.

But when the doctor told me everything, still, I stopped to think.

What is this? Is this death?
Why me? Haven’t I had enough of life’s problems thrown at me?
I am a sinner. Is that it? Is this why?
Until when? Will you give me enough time?
How will I ever be happy again?

It took me long to realize that all I did in those weeks was think. There were no answers that I plainly saw. Everything was just questions. I was asking all kinds of it… What, why, when, how….

And then, I felt stupid enough to think… Who am I asking them to?

In all the times that I was preparing myself for a new life… in all the times that my life has changed… in all the times that I thought I was nothing… I didn’t come up with something. It was a shame.

I never thought of preparing for one of the aspects of our lives that’s more important. I never thought that this will help me with the changes. I never thought that this will tell me that to some, I am everything.

I forgot to think of FAITH. I forgot to think of HOPE. I even forgot to think of LOVE.

I forgot that when you are asking no human being, you are asking one supreme being. I was asking GOD. And you know what? In all the times that I forgot to think again, I realized now that He was answering me.

He answered me through things, through places, through the weather, through books… He even answered me through YOU.

I went to the doctor yesterday for my check-up. First, he congratulated me for being the first patient he’s seen after the holidays that has normal cholesterol results. Then, he gave a nice speech about being a good doctor, knowing almost everything to know about kidneys, being a professor in UP.

He said that my disease is the nastiest among all the kidney diseases. In all the years that he has been a doctor, he cannot explain how in the world was I still okay today. The protein in my urine was then at 4+, now they can only see a trace. He even told me the first time he met me, that I have, at the most, three months before my kidneys start failing. But who are we to complain, he said. We are buying yourself time before you’ll be ready for transplantation.

I have a confession to make, doctor. I wasn’t taking my pills religiously as you thought. I didn’t go on a diet. I ate what you told me not to. I only did two things that I thought did me a lot of good–I lived, and I prayed.

I lived like I wasn’t sick. I went out with friends and family. I sang and danced with the kids. I got sick with them. I cried with them. I went to church with them. I fought with them. I grumbled about doing the dishes. I mumbled when my husband didn’t come home on time.

And everyday, while I was living, I kept on thinking…. I kept on asking God. This time, I was not giving Him a hard time coming up with answers that I rarely see. This time I was asking not just for myself but for everyone else. This time I just ask him every morning, “Hey, Lord, what’s up for today?” and I just let him unfold it for me.

When I came back from the doctor yesterday, God gave me a wonderful gift. He gave me all three–FAITH, HOPE, and LOVE.

But He also gave me back one thing that I lost a long time ago, something I also forgot to see, something that was broken because of all the problems that I have faced, and are continuously facing, He gave me–ME.

Sometimes, I still think too deeply that I have to shake my head to stop. But this time, when I think of things that will make me lose myself again, I intentionally forget… and just ask myself–what was I thinking?

para sa mga nagtatanong

sa tuwing may makakakita o may makakausap ako… lagi akong tinatanong:

“kamusta ka na?”

“ok ka na?”

“dinadayalisis ka na ba?”

hindi naman sa minamasama ko…. alam ko, ‘concerned’ lang kayo sa kin… pagpasensyahan niyo na minsan kung may pagkasuplada ang dating, o napakaiksi ng sagot. ewan ko. siguro nagsasawa na ako sa kakasagot ng “ok lang.” siguro nagsasawa na ako ng kakaisip na may sakit ako. na konting panahon na lang, baka idayalisis na ko. na pag nagsimula akong idayalisis, wala ng katapusan yun. hanggang gusto ko pang mabuhay, tutusukin ako at lilinisin ang dugo ko halos kada apat na araw. pwede rin akong masalinan ng dugo kapag kailangan.

ayoko ng isipin. ayoko ng maramdaman.

ayoko na.

gusto kong mabuhay ng ‘normal’ gaya ng dati. na ang tangi kong problema ay saan ako kukuha ng pera. kung magiging maayos pa ba ang buhay ko. kung magiging ok na ba si Dale.

mas mahirap pala pag hawak mo na ang buhay mo sa iyong mga kamay. lalo na kapag nakaasa ka lang sa iba.

pano na lang ako kung wala si Mama? si Papa? si Ronald? ang mga kamag-anak ko at mga kaibigan? sila na nagbibigay sa kin ng pera, pagkain, gamot, dasal, at higit sa lahat ay ang kanilang walang sawang pagaaruga at pagaalala.

pano na lang kung wala ang mga anak ko na nagbibigay sa kin ng pag-asang mabuhay pa ng matagal? na nagbibigay sa kin ng lakas para ipagpatuloy pa ang labang ito.

hawak ko ang buhay ko. pwede kong wakasan ito sa pagtutol ng dialysis. pero di ko gagawin. lalaban ako hangga’t kailangan.

sabi nga ng pinsan ko, sa dinami-dami ng dinanas ko sa buhay, ngayon pa ba ako susuko?

kaya kung minsan ay makita niyo ko sa daan, ok lang na tanungin niyo ko kung ok na ko… kung kamusta na ko… pero kung ang sagot ko ay “ok lang” o ako’y ngumiti lang… sana ay maintindihan ninyo… hindi ako kasing tatag ng gaya ng inaakala ng marami. umiiyak din ako sa gabi pag tulog na ang lahat. pag wala ng makakarinig.

tinatanong ko rin ang Diyos kung bakit ako, bakit ngayon, at kung hanggang kelan. humihingi din ako ng kaliwanagan at katatagan. nagaantanda din ako sa tuwing nakakapag-isip ng masama.

ok lang ako.

pero kailangan ko pa rin ang mga tanong ninyo.

para sa mga nagtatanong

sa tuwing may makakakita o may makakausap ako… lagi akong tinatanong:

“kamusta ka na?”

“ok ka na?”

“dinadayalisis ka na ba?”

hindi naman sa minamasama ko…. alam ko, ‘concerned’ lang kayo sa kin… pagpasensyahan niyo na minsan kung may pagkasuplada ang dating, o napakaiksi ng sagot. ewan ko. siguro nagsasawa na ako sa kakasagot ng “ok lang.” siguro nagsasawa na ako ng kakaisip na may sakit ako. na konting panahon na lang, baka idayalisis na ko. na pag nagsimula akong idayalisis, wala ng katapusan yun. hanggang gusto ko pang mabuhay, tutusukin ako at lilinisin ang dugo ko halos kada apat na araw. pwede rin akong masalinan ng dugo kapag kailangan.

ayoko ng isipin. ayoko ng maramdaman.

ayoko na.

gusto kong mabuhay ng ‘normal’ gaya ng dati. na ang tangi kong problema ay saan ako kukuha ng pera. kung magiging maayos pa ba ang buhay ko. kung magiging ok na ba si Dale.

mas mahirap pala pag hawak mo na ang buhay mo sa iyong mga kamay. lalo na kapag nakaasa ka lang sa iba.

pano na lang ako kung wala si Mama? si Papa? si Ronald? ang mga kamag-anak ko at mga kaibigan? sila na nagbibigay sa kin ng pera, pagkain, gamot, dasal, at higit sa lahat ay ang kanilang walang sawang pagaaruga at pagaalala.

pano na lang kung wala ang mga anak ko na nagbibigay sa kin ng pag-asang mabuhay pa ng matagal? na nagbibigay sa kin ng lakas para ipagpatuloy pa ang labang ito.

hawak ko ang buhay ko. pwede kong wakasan ito sa pagtutol ng dialysis. pero di ko gagawin. lalaban ako hangga’t kailangan.

sabi nga ng pinsan ko, sa dinami-dami ng dinanas ko sa buhay, ngayon pa ba ako susuko?

kaya kung minsan ay makita niyo ko sa daan, ok lang na tanungin niyo ko kung ok na ko… kung kamusta na ko… pero kung ang sagot ko ay “ok lang” o ako’y ngumiti lang… sana ay maintindihan ninyo… hindi ako kasing tatag ng gaya ng inaakala ng marami. umiiyak din ako sa gabi pag tulog na ang lahat. pag wala ng makakarinig.

tinatanong ko rin ang Diyos kung bakit ako, bakit ngayon, at kung hanggang kelan. humihingi din ako ng kaliwanagan at katatagan. nagaantanda din ako sa tuwing nakakapag-isip ng masama.

ok lang ako.

pero kailangan ko pa rin ang mga tanong ninyo.

gusto kong umiyak pero di ko magawa

nagpunta kami sa Mla. Doctors… humingi ng 2nd opinion… magaling yung doctor… wala akong masabi…

ang gist… we’re just prolonging the inevitable.

the steroids are just buying me 3 months time without dialysis… mahaba pa ang explanation and i don’t have the strength to say anything anymore.

so, dialysis, 2x a week for life til we decide on transplantation.

my mom was devastated.

if she is already, how can i be?

i have to be strong for the whole family.

HOPE: the doctor does not trust the pathologist… requesting biopsy slides for 2nd opinion at NKI… this time, i’m wishing the biopsy results are really wrong and that there’s more time we can bide before dialysis.

gusto kong umiyak pero di ko magawa

nagpunta kami sa Mla. Doctors… humingi ng 2nd opinion… magaling yung doctor… wala akong masabi…

ang gist… we’re just prolonging the inevitable.

the steroids are just buying me 3 months time without dialysis… mahaba pa ang explanation and i don’t have the strength to say anything anymore.

so, dialysis, 2x a week for life til we decide on transplantation.

my mom was devastated.

if she is already, how can i be?

i have to be strong for the whole family.

HOPE: the doctor does not trust the pathologist… requesting biopsy slides for 2nd opinion at NKI… this time, i’m wishing the biopsy results are really wrong and that there’s more time we can bide before dialysis.